Hi all , I am a survivor of the beast 04/05 a year of chemo in hospital osteosarcoma
man’s now separate cancer head and neck i’ve had surgery removed tumor and lymph nodes, my forearm is my new tongue and floor of mouth and it’s to big i have had three graphs on forearm. looks terrible and now from southern speech i sound like i’m from bar harbor lol
im blessed my trach is gone and tube.
mom not alone the more i speak y people
even the radiation team open cabinets to get my masks i saw all the masks ,sorry but this is worse than covid and no one is speaking f this publicly .
thousands all over from either smoke , drinking or vape and HPV. and all ages first time i was 44 and now i’m 60 holidays twice now i can’t eat due to cancer i hate that this is happening, thank you for listening laura
Hi Laura and welcome to the Online Community but so sorry to hear about the ongoing journey you have had and are having but I do hope you will find lots of comfort and support from people who understand here on the Online Community.
Although I have a different type of cancer I still have my mask in the garage, use it to clean my paint brushes
The Community has many dedicated support groups so can I recommend you start by joining our Head and neck cancer and our Life after cancer groups. These are safe places to talk to other people who might be dealing with the post treatment challenges.
If you'd like to connect into this group, you need to join the group. First click on the Green link I have created above. Then click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a new post by clicking in the box near the top right with + New (Computers) or + (Mobile Devices). You will then see a dropdown menu so why not hit ‘Start a Discussion in New here, say hello’
You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.
It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
Talking to people face to face can indeed help a lot but during these strange times it’s not that available but do check to see if you have any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre
Always around if you need further help in navigating the community.
All the very best ((hugs))
