My partner had his bladder removed on the 25th August, my partner chose the ilenois conduit (apologies for spelling) he also had his prostate removed. He was only meant to be in hospital for a week tops! He ended up in hospital for 3 weeks .. he ended up with a fistula and needed to give his bowels a break.. he then contracted covid and ecoli. He wasn't given food or fluid for 3/4 days, he lost a significant amount of weight and muscle mass, they decided to put a pick line and started him on TPN! He had a drain bag which was draining this fowl smelling green stuff... eventually he came home, he was not OK.. he nearly collapsed.. we took him to the GP, we found out that his HB is so low he would need a blood transfusion. He went to hospital and needed 4 units of blood. We then found out after he came out of hospital which was another 2 weeks ... he had sepsis and the only reason we found out was because it was on his discharge letter ... we have a 2 Yr old daughter and its affected her so much. Thanks for reading my story ...
(P.S I was Mimi250294 but it wouldn't let me log in so I have created a new account)
Hi and a very warm welcome to the online community
I'm sorry to read about all that you and your partner have been through over the last few months. Living with a cancer diagnosis can certainly be very challenging!
I can see that you've already found and posted in the bladder cancer group which is a great place to ask questions and share experiences about treatment, etc.
Could I suggest that you also join the carers only group which is a safe and supportive place to discuss your worries and emotions with others who are caring for someone with cancer. If this is something that you'd like to do clicking on the link I've created will take you there where you can join and post in the same way as you did with the bladder cancer group.
It would be great if you could pop something about your partner's diagnosis and treatment into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
