Hi everyone.
New member here… Mum was diagnosed with cancer (mouth) a few months ago. We’ve had her gruelling operation & now the underestimated hard part… the journey back and the unknowns of chemo/radiotherapy and what the future holds. A blip in the road with the skin graft/mouth flap means a feeding tube remains in situ & rightly so… mum is going through all the emotions this journey is bringing. It’s getting harder to my surprise.
I am the one she leans on. I organise her care amongst my family with me taking the lead role. I do not mind this. Dad needs me too and I try and help them all in many ways as well as keeping the smiles going and the positive vibes alive.
Life feels on hold right now and although there’s nowhere I’d rather be (it’s my mamma & we only get one) I’m beside her all the way… but sometimes it overwhelms, sometimes the helplessness consumes me & sometimes I too want to scream. We’re so fortunate in many ways so I give my head a shake more often than not…. I am doing this, we’re in it together & she makes me so proud every day….
I guess it’s normal. Reading comments it sounds so. I just felt the need to join your group.
Hi and welcome to the Online Community.
I am so sorry to read about your mum’s journey but I do hope you will find the support available in the community helpful at this difficult and challenging time.
Talking with others who are walking the exact same type of cancer support path (my one is completely different) will help you navigate this unwanted journey.
The New to Community is like the Community Reception area and as there are many cancer types and experiences so likewise the Community has many dedicated support groups to connect into so can I recommend you start by joining our supportive Head and neck cancer group as this will be a good place for you to connect with other folks who may be on the same cancer support pathway.
Navigating the community will depend on the device you are using. To join a group just click on the green link above then scroll down and choose 'click to join' or 'join' on the page that opens.
You can then introduce yourself by putting up a post by clicking on ‘New Thread’ or ‘New here, say hello’ then hit the box with the X on the top right (phones).
You could just copy and paste the text from this your first post and you can also join in with existing ‘Discussions’ by clicking on 'reply'.
When it comes to the practical challenges of supporting someone you may benefit from talking with others caring for family and friends so can I recommend that you join our supportive Family and friends and Carers only groups where you will connect with others supporting family and friends
It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
All the very best ((hugs))
Thank you
the Mandela quote at the end is perfect 
x
It is so true and has been our plumb line during my 22 years journey with my incurable blood cancer ((hugs))
