I have MDS which is basically bone marrow cancer. Ive had this for 14 years. I was in remission until Feb 2021 when I got Covid. Im now facing a bone marrow transplant at 55. Ive have gene mutations which could lead me to develop Leukemia. Im back on Ciclosporin as an immuno suppressant. Unfortunately it has a really bad effect on my kidneys. Id been told that if I dont have the transplant I may only survive another 5-10 years and that fighting Leukemia would be a lot harder.
However now my kidneys arent doing so well and my local consultant seems to be back peddling regarding the BMT, which I have a date for in Glasgow. im so confused about it all. Every day I feel sick to my stomach thinking about it all.
Has anyone been through this type of transplant? Looking for words of help.
Hi Longwood and a very warm welcome to the online community
I'm sorry to read all that you're going through and that you can soon get some clarification.
The online community is divided up into different support groups and I can see that you've already found and posted in the MDS and MPN group which will be a great place to ask questions, share experiences and get support.
It would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
