Hi,
My mum was diagnosed with secondary cancer 6 weeks ago and we now know it has spread quickly to other parts of her body. It's such a shock and she has come out of hospital but she only sees a palliative nurse once a week. The nurse is not associated with this organisation, she is from a local hospice. Mum has clearly stated she doesn't want to know anything about next steps and I can see how low and frightened she is. We all are absolutely devastated.
The palliative nurse said we are all putting obstacles in her way because my mum doesn't want to talk about next steps. She has been quite harsh and I'm quite glad she only comes once a week because she makes mum quite down.
My heart is absolutely breaking and as I am in completely unknown territory I wondered if forcing a patient to discuss the next stage was normal. I just want to make things
as easy as possible for mum. I can see she is going downhill fast and when she begs us to put her out of her misery I don't know how to hold it together for someone I love so dearly.
Hi and welcome to the Online Community. I am so sorry to read about your mum’s diagnosis and prognosis but I do hope you will find the support available in the community helpful at this difficult and challenging time.
Talking with others who are walking the exact same type of cancer support path (my one is completely different) will help you navigate this unwanted journey.
The New to Community is like the Community Reception area and as there are many cancer types and experiences so likewise the Community has many dedicated support groups to connect into and when it comes to the practical challenges of supporting someone you may benefit from talking with others caring for family and friends so can I recommend that you join our supportive Carers only and Supporting someone with incurable cancer groups where you will connect with others supporting family and friends.
Navigating the community will depend on the device you are using. To join a group just click on the green link above then scroll down and choose 'click to join' or 'join' on the page that opens.
You can then introduce yourself by putting up a post by clicking on ‘New Thread’ or ‘New here, say hello’ then hit the box with the X on the top right (phones).
You could just copy and paste the text from this your first post and you can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
All the very best ((hugs))
