Hello. My name is Emma and I'm new to the community.
My brother is 41 years old. He has secondary brain cancer. Having being diagnosed approximately two years ago and treated with immunotherapy, he is now palliative care only and is currently being cared for in our local hospice.
He has a right-sided hemiplegia, transient confusion/memory issues and localised tremors. In the last few days he has had to be been transferred via hoist. He is clearly deteriorating but his is life expectancy is undeterminable.
In terms of future care, the doctors have, in passing, mentioned a nursing home. I simply cannot bear the thought of this. He still has capacity and knows exactly what's going on. As hard as it would be, I would sooner care for him at home, in conjunction with a supporting care package.
I'd be interested to know if anyone has had a similar experience.
Emma x
Hi Emma and welcome to the Online Community.
I am so sorry to read about your brother but I hope you will find the support available in the community helpful at this difficult and challenging time.
The New to Community is like the Community Reception area and as there are many cancer types and experiences so likewise the Community has many support groups and when it comes to the practical challenges of supporting someone you may benefit from talking with others caring for family and friends so can I recommend that you join our supportive Carers only and be Supporting someone with incurable cancer groups where you will connect with others supporting family and friends.
Navigating the community will depend on the device you are using. To join a group just click on the green link above then scroll down and choose 'click to join' or 'join' on the page that opens.
You can then introduce yourself by putting up a post by clicking on ‘New Thread’ or ‘New here, say hello’ then hit the box with the X on the top right (phones).
You could just copy and paste the text from this your first post and you can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, financial guidance or just a listening ear.
All the very best ((hugs))
