BRCA1 so considering risk reducing surgery

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I'm hoping to find information to help with my upcoming decisions about risk reducing surgery. I was diagnosed with triple negative breast cancer last year so have had a couple of surgeries (lumpectomy and then full axillary clearance), 4 months of chemo and a month of radiotherapy. I was then put forward for genetic testing which has revealed I carry a variant in the BRCA1 gene. I am now onto my next adventure of deciding if I want to have surgery to remove my ovaries and fallopian tubes and then possibly a bilateral mastectomy. Feeling a little overwhelmed, scared and emotional at the moment.

  • Hi  and welcome to the Online Community.

    I am so sorry to read about the journey you are on but I hope you will find the support available in the community helpful at this difficult and challenging time. Talking with others who are walking the same type of cancer treatment path will help you navigate this unwanted journey.

    The New to Community is like the Community Reception area and as there are many cancer types and experiences so likewise the Community has many support groups so can I recommend you start by joining our supportive Breast cancerTriple negative breast cancer and BRCA Positive groups as these will be good places for you to connect with other folks who may be on the same cancer treatment pathway.

    Navigating the community will depend on the device you are using. To join a group just click on the green link above then scroll down and choose 'click to join' or 'join' on the page that opens.

    You can then introduce yourself by putting up a post by clicking  on ‘New Thread’ or ‘New here, say hello’ then hit the box with the X on the top right (phones).

    You could just copy and paste the text from this your first post and you can also join in with existing ‘Discussions’ by clicking on 'reply'. 

    It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, financial guidance or just a listening ear.

    To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section

    All the very best ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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