My adult son as had a relapse with his leukaemia

Hi and welcome to the online community

I'm sorry to read that your son has had a relapse with ALL and I can understand what a worrying time this must be for you.

As the online community is divided up into different support groups I'm going to recommend that you join the ALL group, which is a great place to ask questions and share experiences with others who have this type of cancer or who have a family member with it, and also the carers only group which is a safe and supportive place to share your worries and emotions.

To join just click on the links I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post in the same way as you did here and join in with existing conversations by clicking on 'reply'. 

It would be great if you could pop something about your son's diagnosis and treatment into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help.

x

Hi Davern and welcome to the ALL forum although not a place you would hope you would find yourself. I am sorry to hear that your son's ALL has returned. Whilst you cant take it from him I am sure you can be there as the tower of strength you can give him as his Father.

Anyone who has had a cancer diagnosis either themselves or a loved one knows how scared it can make you feel as this being a relapse it must bring back all of those feelings from before. 

I myself was diagnosed with ALL as an adult back in 2012 and now 9 years later I am doing well and leading a normal life.. The treatment isn't the easiest as you know,  but it is doable.

I can see whilst I have been typing latchbrook has provided links to the ALL group and also the carers only group which hopefully will put you in touch with people experiencing the same emotions and concerns as yourself. If you have any questions please feel free to ask.  You can see my profile and my journey by clicking HERE

Hi. First of all I’m a woman. I’m the mother not father. But that doesn’t matter. 
my son is 30. He was diagnosed in may 2020 after being treated for Covid as he had a cough and bad chest for 6 weeks. Doctors weren’t seeing patients at the time and was all done over the phone. I insisted that something be done so finally a blood test was done and my son was rushed into hospital 2 hours later with dangerous low levels of blood. We wasn’t allowed to see him because of Covid. He was negative when he finally got a test. 
the treatment was harsh and we had all kinds of infections including gout, sepsis and Bells  palsy. Fungus infections from the picc line and finally catching Covid in the hospital so treatment had to stop. It was all very frightening. 
my son was in rimmision after the first round of chemo and we thought he was going to beat it. 
just this week we have to deal with a relapse. We was warned that it could happen. I think it’s even more frightening this time as we know the treatment can fail. What’s the next step? Will that work? He’s so young all his life in front of him. It’s the worst thing that you want for your kids however old they are. 

Hi Davern.. Sorry I don't know why I thought you were a father other than perhaps trying to put myself in your position.

As a Mother I am sure it is even more difficult.

Sounds like your son is a real fighter and whilst it will be a huge disappointment to him and your family I am sure he will pick himself up from this setback and fight again.

I can see that you have posted on one of the threads in the ALL forum where another Mothers son had relapsed and after a bone marrow transplant is now doing well which hopefully will give you some hope moving forward.

Another place to have a look at posts is in the stem cell transplant forum as this is where a lot of people who have struggled with remission with blood cancers post about many different types of treatments they are given to once again get them back into remission before having a stem cell transplant. If you click HERE it will take you there.

Hopefully your son's medical team are communicating what they propose are the next steps and once again you will all have to put your trust in them.

I am sure they will find a way to treat the ALL and your son will have a long life ahead of him.