Hello, I'm a 50 year old aspergers dyslexic adult, I am employed in a medical field, high functioning, and have episode's of depression. My son (m20) is similar, with social anxiety syndrome. My mother is troubled with ascites and a recent ovarian cancer diagnosis. My father is her main carer, he is dyslexic. My Mum has never had or sought a mental health diagnosis but is reclusive, agoraphobic and likely at least to degrees all of the above. She does not work, drive or socialise and lockdown (before her diagnosis) suited her lifestyle to a T.
So, we are not, as a family, communicating very well. Mum doesn't want to talk about it or tell anyone. No discussion of plans, not reading supporting materials, be taken to appointments to endure events but not be told about what is or might be happening. Dad wants to, and is, telling everyone...open forum at the village bbq! My son just wants to ask questions, if I go back to Uni for term in September will I be able to visit Gran, do I plan to be home Xmas or stay clear due to infection risk. We lost his other grandmother this year...Will Gran die too?
I am informed about neoplasia, medicine and surgical care, I have discussed and asked questions of her oncologist at an MD level. I know about the process, proposed drugs and their pharmacology...and can't talk to any of them about it.
Dad "Mummy doesn't need to worry about anything to do with momentum because she doesn't move fast at the best of times" when listening to nurse explain omental metastases...
Looking for me for a place to talk technical, and how to support such a neurodiverse group who can access but not engage with normal support resources...
An impossible task?
Hi and welcome to the online community
I'm sorry to read that your mum has been diagnosed with ovarian cancer and I know what a difficult time this will be for the whole family.
As the online community is divided up into different support groups I'm going to recommend that you join the ovarian cancer group, which is a great place to ask questions and share experiences with other who are either dealing with this cancer themselves or are a family member of the person with cancer, and also the family and friends group where you can share your feelings and get support with others who have someone living with cancer.
To join either or both of these groups just click on the links I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about your mum's diagnosis and treatment into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
