Hi, I'm new to the group and just wanted info from others about stem cell transplant.
I was diagnosed with Myeloma March 2021 and started treatment in April. Treatment went really well and I am now waiting for a stem cell transplant which is all going to start at the end of August.
The thing is I have not been told much about it just what I have looked up, but apparently I'm starting of with a premobilisation work up, I do not have a clue what that is. I am quite anxious and I'm trying to not stress about it all.
Thanks for taking the time to listen
Hi and welcome to this corner of the Community although always sorry to see folks joining us. I am Mike Thehighlander and I help out around our blood cancer groups.
I don’t have Myeloma but was diagnosed way back in 1999 with a rare incurable but treatable type of skin Non Hodgkin’s Lymphoma Stage 4a and although my blood cancer ‘type’ is different I have experienced most types of treatments used but not necessarily the exact same drug mix……. Including two Allo (donor) Stem Cell Transplants (SCT)
The New to Community is like the Community Reception area and as there are many cancer types and experiences so likewise the Community has many support groups so can I recommend you start of by joining our supportive Stem cell transplant group as this will be a good place to connect with folks who, like me have been through the SCT process.
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I will keep an eye open for you in the SCT group. It would also be helpful to know what type of SCT you are going to have. Is it an Auto SCT where your clean Stem Cells are harvested and once your immune system is taken down you get the cells back or an Allo SCT where you get Stem Cells from a matched donor ((hugs))
