Hi
I had a total hysterectomy with removal of ovaries and lymph nodes 2 weeks ago for low grade endometrial stromal sarcoma, I know this is a rare form of endometrial cancer and wondered if there is anyone out there in the same position? I’m still waiting for my staging and after what I have read am worried about recurrence, it would be great to chat to anyone with a similar experience. Thanks and take care xx
Hi and welcome to the Online Community but so sorry to hear about your diagnosis.
A cancer diagnosis like this can be very challenging but talking with others who are walking the same type of cancer treatment journey will help you navigate this difficult time.
The New to Community is like the Community Reception area and as there are many cancer types and experiences so likewise the Community has many support groups so can I recommend you start of by joining our supportive Womb (uterus) cancer group as this will be a good place to connect with folks who may be on the same cancer treatment pathway.
To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens.
You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, support, financial guidance or just a listening ear.
We also have Cancer Nurse Team in our Ask an Expert section, but do allow two working days for replies from our expert team.
To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section.
All the very best ((hugs))
