Hi everyone, in November 20 I was diagnosed with serous womb cancer in December I had a hysterectomy followed in February with 4 rounds of chemo then 4 brachytherapy ending end of April. After all this I have felt very well but very tired. I had an oncology call in July and everything is well but I feel so lonely. My family have been a tremendous support and friends but I feel that because my cancer has gone everyone thinks oh she’s ok and just gets on with life. But I get scared that it may come back and I’ve been so low not having anyone to talk to. X
Hi Mychett, It's good news that you are 'doing well' so to speak but I do understand what you mean about feeling lonely. I was diagnosed with Serous Endometrial cancer and had Total Hysterectomy 4 weeks ago. My family and friends were/are being supportive as you said but each day I improve I feel the contact that I had initially is fading... and as I am on my own most of the day ( my partner is in work ) I find myself wandering around the house feeling lost ( and alone )..I put it down to the fact that others who have not experienced the trauma we feel with this diagnosis have no Idea what we are feeling or going through so although they mean well there is no empathy..
It's quite unusual for me to feel alone as I have always been happy in my own company, and have hobbies I did and still do everyday to keep me occupied, but even that isn't working at the moment, as my concentration is not brilliant. I have found solace in a couple of really good books, that help pass the time.
I am due to get my results this Friday 6th August to find out what my future holds re treatment etc:.. so that is preoccupying my mind all the time with the what if 's.and I am pretty sure even after that I will have something else to worry about. One thing I never expected was how much Cancer consumes your life, It takes over every waking minute ..and I don't want that, I want to get my life back, to go out and enjoy the simple mundane everyday things I used to take for granted
Now that you Have your results and your treatment is done maybe it's time to look for something to give your mind the distraction It needs to be able to move forward. Long country walks ,go out for afternoon tea ( I love cake !! ) visit the zoo . anything to get you back into the swing of things as the busier you are the less time you will have to worry.
Take Care
.Onwards and Upwards.
.
Hello nanny/Janet I like your ideas especially the walking and zoo. I might just start walking each day. Please let me know how you get on with your results? Mine were stage 1 grade 3. Yours is the same the chemo and brachytherapy were all fine. Sending lots of love xxx
Thanks for your info, there is so little information re Serous so its all been very worrying, sounds like our diagnosis are pretty much the same, they have been very reluctant up to now to talk about follow up treatment until they new if it has spread so Friday is a big day for me . I have prepared myself ( i think) for the worst, and hope for the best.
I walk most days as i am lucky enough to live close to a park. a couple of circuits round there and i always feel better I'll let you know how I get on.
xxx
They said that when they did my hysterectomy they removed all the cancer the chemo and brachytherapy was to stop it coming back so hopefully yours will be the same xxx
Hi and a very warm welcome to the online community
Although I didn't have the same type of cancer as you I do recognise the reaction of some friends and family to the end of treatment. I think it's very hard for anyone who hasn't had cancer to understand the worry that it might come back but you have definitely come to the right place to chat to people who do understand.
The online community is divided up into different support groups so I'm going to recommend that you join the womb cancer group which is a great place to ask questions, share experiences and get support.
To join the group just click on the link I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
When you feel ready it would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help.
x
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