New to group

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Hi all, 

I am Sigrid & my other half was diagnosed with kidney cancer last year had his kidney removed. But very quickly his cancer has returned & now in liver, lung & brain. He’s now on 2nd line treatment due to side effects & cancer still growing. 

He’s recently been in hospital twice due to infection & inflammation. Beginning to get tired much more quickly & not able to be as active as he was last year which is so frustrating for him. Trying to fit in as many bucket list things as we can on days when energy is good. 
Just wondering how everyone else is managing through similar situations? Friends & family are very supportive but COVID has made them visiting or us them, hard over the last year. I know I need more support (more mentally at present) from outside to be able to fully cope with what is happening & know it’s time to extend an arm for help.

  • Hi  and welcome to the Online Community but so sorry to hear about your husbands diagnosis, it sound like things have been very challenging.

    A cancer diagnosis in the family can be very difficult but talking with others who are walking the same type of cancer journey (my one is completely different) will help you navigate this difficult time.

    The New to Community is like the Community Reception area and as there are many cancer types and experiences so likewise the Community has many cancer specific support groups so can I recommend you have a look at our supportive-

    Kidney cancer

    Lung, secondary cancer

    Liver, secondary cancer

    Brain, secondary tumours

    groups as these will be good places to connect with folks on the same cancer treatment pathway.

    To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens.

    You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'. 

    When it comes to the practical challenges of supporting someone you may benefit from talking with others caring for family and friends so do check out our Carers only group where you will connect with others supporting family and friends

    It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, support, financial guidance or just a listening ear.

    We also have Cancer Nurse Team in our Ask an Expert section, but do allow two working days for replies from our expert team.

    To find information covering diagnosis, treatments and pages covering most types of cancers check our Online Information and Support Section

    All the very best ((hugs))

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thank you will have a navigate around