Hi everybody, thanks for letting me join.
I consider myself fortunate in that the cancers I had were able to be removed by surgery and I do not seem to have a recurrence. I was diagnosed with two tumours in my throat and one under my tongue. I also had the first signs of cancer at the entrance to my stomach after having Barretts oesophagus for many years. After the operation on my throat and tongue, I had radio therapy on the area. Later in the same year I had the oesophagectomy operation. As I may have had difficulty eating and I would have had to have one after the oesophagectomy I had a feeding tube (jejunostomy?) fitted. I can honestly say I've never been in such pain. When I came round it was like Mike Tyson was bashing away at my stomach.Anyway, I had that tube in for almost 21/2 years. (After the radio therapy, my taste went off and my saliva making just about gave up). The tube started to leak very close to the skin, so I had a new type of tube fitted. This tube was a temporary tube, supposedly being changed every 3 months. This tube has a balloon at the end which has to be blown up with water which has to be changed every week. However, since the first tube was fitted, in I think last September, I have had three tubes fall out because the balloon has disintegrated and one tube had to be replaced while I was in hospital because a doctor, trying to uncouple it from the feeding bag, pulled the connection off the tube. The last tube lasted for just over a month. It would appear that my gastric juices are too much for the material of which the tubes are made. I was wondering if anyone else has had the same experience.
Hi superstrath. I live at the Head and Neck Cancer group where discussions on feeding tubes are quite common. You could post your query there
https://community.macmillan.org.uk/cancer_types/head-neck-cancer-forum
I can tell you that the “experts” there talk about The Monarch which has no ballon and is more stable
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
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