Hello. Following an MRI at the beginning of May 2021 I have been diagnosed with a Vestibular Schwannoma (Acoustic Neuroma). Have shared with close family and some colleagues but feeling a bit lost. Hellos from people who understand would be very welcome. Take care everyone.
Hi and warm welcome to the Macmillan Online Community but sorry that you had to find us and especially sorry to hear about your diagnosis.
A diagnosis can be challenging in so many ways but talking with others who are walking the same type of journey can help you navigate this difficult time.
The Community is organised into support groups and I see you have joined our supportive Low-grade brain tumours group, this will be a good place to connect with patients and families navigating the same type of journey.
To go to the group just click on the link above then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service can give lots of cancer information, support, financial guidance or just a listening ear. We also have Cancer Nurse Team in our Ask an Expert section, but do allow two working days for replies from our expert team.
To find information covering diagnosis, treatments and pages covering most types of cancers can be found on our Online Information and Support Section.
All the very best ((hugs))
It’s a pleasure and I do wish you well on your journey ((hugs))
Hi Ddg1 and welcome to the Community but sorry to hear about your husband.
I do see that you have joined and posted in our Low-grade brain tumours group and also posted a question to our Nurse Team (do allow a few working days for them to reply)
If you need further help navigating the community please get back to me.
