Hi, I was sent for a colonoscopy 3 weeks ago where I was told I had bowel cancer and it would involve an operation. I was too shocked to ask anything. A week later I had an MRI and CT scan and was informed that my results would be discussed at the medical team meeting last week. One nurse told me someone would ring Thursday or Friday last week but by Friday afternoon I hadn’t received a call, so I phoned them. I was then informed I wouldn’t get a call until this week. It’s now Wednesday afternoon and still no call. The waiting is awful. Is this normal? I’m so stressed and anxious.
Hi Twi70 and warm welcome to the Macmillan Online Community although sorry that you had to find us and especially sorry to hear about your diagnosis.
With regards you waiting for a call, in ‘normal’ times this happens a lot... but this is not normal times - sometimes you just need to be your own advocate and keep pushing the system until you get an answer...... but waiting is very stressful.
Talking with others who are walking the same type of cancer treatment journey will help you navigate this challenging time.
The Community is organised into support groups so can I recommend you join our supportive Bowel (colon and rectum) cancer group as this will be a good place to connect with patients and families navigating the same type of cancer journey.
To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens.
You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones). You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
To find information covering diagnosis, treatments and pages covering most types of cancers can be found on our Online Information and Support Section.
All the very best
