Hello everybody, I’m new to the group and just want to have a bit of contact with others after this period of isolation. My husband was diagnosed with a terminal brain tumour - GBM4 - in August 2018 following a stroke caused by the tumour. He has been receiving palliative chemo ever since and physically is doing pretty well but has a lot of cognitive problems, and is certainly not the man I married. We live from 3 month scan to3 month scan,it’s impossible to think further ahead. Because he looks ok, people don’t understand what’s going on and it’s really lonely. We havee we two sons who cope really well but I can’t put my worries on them
Hi and warm welcome to the Macmillan Online Community, but I see you posted a few years back but so sorry to see you back and hear about your husbands diagnosis and your ongoing challenges.
A cancer diagnosis like this in the family brings many questions but talking with others who are walking the same type of cancer treatment journey will help you navigate this challenging time.
As you know the Community is organised into support groups so can I recommend you join our supportive Family and friends, Carers only and supporting someone with incurable cancer group groups as you will connect with others walking the same journey supporting family through their cancer journey.
To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens.
You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
((hugs))
Hi Lizzie31
sorry to hear of your husband's diagnosis. My husband was given a terminal diagnosis (GBM4) last September so I can relate to what you are going through.
In the space of two very short weeks our world imploded and following surgery to debulk the tumour , he has never been the same person. HIs GBM4 was in the Broca's area (communication centre) in the brain so that has brought a whole raft of challenges including speech impact. Physically though he's still very fit (he's a marathon runner) and now that the scar has healed and is less noticeable he looks ok. People who haven't experienced this do struggle to understand because to all intents and purposes he doesn't look ill. An hour in his company would show them otherwise.
The Carer's Only group is a great source of support on here. Sadly, lots of folk going through similar journey but its nice to know you're not alone.
Hang in there. Stay strong. Here to listen if it helps.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
