Hello everyone.
I decided to join up this afternoon as I am finding my side effects from my cancer treatments are wearing me down more and more.
Hopefully I will be able to find advice from others who have experienced the same or similar.
Firstly though I need to figure out how to navigate the site to find the information I need.
Briefly in the last year I have had a radical hysterectomy, 6 months of carbotaxel, 25 pelvic external beam sessions and finally 3 brachytherapy sessions. My oncologist says I have had an extreme reaction to the radiation and it just needs time.
I am now 4 months post completion and my vaginal, vulval, urinary and rectal symptoms are not resolving any and it's affecting my ability to get out and moving. I also now have the dreaded lymphoedema in my genital area and legs.
I am interested to hear from others who may have had similar experiences.
My cancer is dedifferentiated grade 3 stage 3b endometrial which I believe is relatively rare (only recognised by the WHO in 2014) and more aggressive than a sarcoma. None of the staff looking after me at any point have ever heard of this type of endometrial cancer.
Thank you in anticipation.
x
Hi and welcome to the Macmillan Online Community although sorry that you needed to find us and especially sorry to hear about your diagnosis and ongoing challenges.
A cancer diagnosis brings many questions, confusion, endless challenges and at times lots of stress but talking with other people who are walking the same type of journey will help you navigate this rollercoaster.
The Community is organised into dedicated support groups so can I recommend you join our supportive Womb (uterus) cancer group, this will be a good place to connect with others navigating the same type of cancer journey.
To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
To find information covering diagnosis, treatments and pages covering most types of cancers can be found on our Online Information and Support Section.
All the very best
