Hi all , my name is DECY , new to this. Had a grade 3 Astrocytoma 5 years ago. Done chemo and radiation. About a year ago I have developed this jerking . Suppose the best way to describe it is like a fish out of water. EEG says it’s not Epileptic related. Neurologist trying different meds but no good. Any help please or anyone with similar story. Thanks
Decy
Hi and a very warm welcome to the online community
I'm sorry to read about this jerking that you're experiencing, it must be very unpleasant for you.
I can see that you've already found and joined the brain cancer group which is a great place to ask questions, share experiences and get support. When you're ready to post there, clicking on the link I've created will take you straight back.
When you have a minute, it would be really useful if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
