Hi everyone, I've just joined up so I'm new to this community of support but I'm not new to cancer, first one in 2009, second one in 2016 - both breast cancer, the second one more invasive and aggressive than the first. So I've been on various cancer treatments for these and am continuing with Faslodex Fulvestrant.
Anyhow my reason for joining here now is because I'm wondering if anyone has experienced the awful side effects of being on Faslodex Fulvestrant for a few years, specifically the fatigue, weakness, all over body stiffness, back, joint and muscle pain and pain in arms, legs and neck.
I do understand everyone's trauma going through all the horrors of a cancer diagnosis and all that it brings but if someone maybe is managing side effects of fulvestrant and would like to share their experience that would be wonderful, thank you and kind regards
Hi FunnyGal and welcome to the Macmillan Online Community although sorry that you needed to find us and especially sorry to hear about your diagnosis and ongoing issues.
A cancer diagnosis brings many challenges but talking with other people who are walking the same type of journey will help you navigate this rollercoaster.
The Community is organised into dedicated support groups so can I recommend you join our supportive Breast cancers group, this will be a good place to connect with others navigating the same type of cancer journey.
To join a group just click on the link above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
To find information covering diagnosis, treatments and pages covering most types of cancers can be found on our Online Information and Support Section.
((hugs))
