Have recently been informed of Metastatic spread of cancer coming from probably prostrate cancer diagnosed in 2015 or Sigmoid cancer diagnosed January 2021. Treatment is now palliative in form of hormone therapy medicine albiraterone + prednisolone. Have been advised that the prostrate cancer has a prognosis of two years. With this information the colorectal surgeon has advised that surgery is not advised due to COVID and survival rate for me would be 76%. After a pet scan was informed the cancer is spreading in the lymph node system and is reaching the liver and the lungs.
I have recently contacted mcmillan nurses to seek advice for physical and emotional concerns and had my first telephone conversation this morning. As there is no centers open at present she advised that I should make contact with people through the available on line community.
Hi and welcome to the Macmillan Online Community although sorry that you needed to find us and especially sorry to hear about your diagnosis.
An incurable cancer diagnosis brings many questions, confusion and lots of stress. Although my type of blood cancer is incurable it’s stable but talking with other people who are walking the same type of journey will help you navigate this rollercoaster.
The Community is organised into dedicated support groups so can I recommend you join our supportive Living with incurable cancer - incurable patients only group, this will be a good places to connect with others navigating the same type of cancer journey.
To join a groups just click on the links above then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself by putting up a ‘New Thread’ or hit the box with the X on the top right (phones), you could just copy and paste the text from this your first post. You can also join in with existing ‘Discussions’ by clicking on 'reply'.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listening ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
All the very best
