finished 36 sessions of radiotherapy in Nov of 2019. and was diagnosed with Osteoradionecrosis soon after. I have no problem with chewing, talking or swallowing but do suffer pain when trying to open my mouth any more than a little. I haven't been able to take large bites of food for quite a while but the situation is getting much worse recently. I had a tooth extraction and a further biopsy about a month ago which seems to have increase the problem. What concerns me is that this wasn't really a problem for a very long time but now seems to be here with a vengeance. Has anyone experienced similar issues?
Hi and a warm welcome to the Online Community and I am so sorry to hear about the challenges your are experiencing following your radiotherapy.
The Online Community is organised into dedicated support groups so you may want to look at joining our supportive Head and neck cancer group as this may be a good place where you will connect with others walking the same post treatment journey.
Follow the above link then choose ‘click to join' or ‘join’ when the page opens. You can then introduce yourself, post questions or just join in with existing discussions by clicking on 'reply'.
It’s always good to talk and the Macmillan Support Services provides lots of information, support, financial guidance or just a listing ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
All the very best.
Sorry reply got deleted when I tried to remove a duplicate post
Hi big guy 73 pop onto the Head and Neck cancer group. There are threads on this though only a few as it’s not common. Copy and paste your question and I’ll get you a link to a lady with osteoradionecrosis who posted just today. I’m afraid it’s a problem with a lifelong risk that all of us who have had radiotherapy to the jaw have to contend with.
Meanwhile I would suggest you get straight back to the hospital if you haven’t already. as there are things that can be done to mitigate the damage. Best of luck
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
