Diagnosis turned our world upside down

FormerMember
FormerMember
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Hi, new here and not sure what to say but September 2020 my husband had a seizure at home out of the blue no prior warnings etc. Diagnosis a week later was brain tumours/cancer stage 3. So far hes had an intensive course of radiotherapy and currently 4 weeks post therapy.  I guess I'm really struggling with it all as I have gone from being the cared for to the caring for (diagnosed with multiple sclerosis 2016)  i cant erase what i saw that day and feel like i cant move on ,every time he has pain etc I'm taken right back to that day. How do you even begin to cope?

  • Hello Nanof4

    Thank you for joining the community, you are very welcome!

    We know that this is the last place you want to find yourself, and how hard it is to write your first post, but I hope that in doing so you will get some great advice and tips and be able to find some coping mechanisms to help you going forward.

    It must have been a truly scary experience when your husband had his seizure at home, and then to be advised of the brain tumour/cancer there is no surprise you are struggling. 

    There are some areas on the website which you might like to visit including Supporting someone with cancer , Carers Only and Friends and Family.

    I hope that you can find other help too, especially as I imagine you will continue to need help with your multiple sclerosis, have you a contact in adult social care who may be able to advise you?

    It is very difficult to not think back on events that changed our way of living, our comfort zone!, but in time you will think of it less, September, after all is only four months ago.

    You or your husband may also want to take a look at The Brain Cancer Forum where others who have a similar experience, may be able to advise you further.

    Take care of both of you

    Lowe'

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