My husband Keith is 72 and is over 2 years into diagnosis of light chain myeloma. His induction treatment Velcade, Thalidomide and Dexamethasone was intended to take him to SCT. Sadly he developed acute GI problems, resulting in admittance to hospital and 3 stone weight loss. Hence SCT is no longer an option for him and he has now had Cyclophosphamide and Lenolidomide, together with Dex, in various strengths, plus treatment breaks when side effects get too bad. Unfortunately his myeloma seems to be refractory with good results at first, only to relapse. Currently he is taking 20mg Len plus Dex and we have a face to face appointment with the Consultant tomorrow to find out latest results and discuss future treatment options. Pomalidomide looks like the next step if Len not working, but since diarrhoea issues seem to plague him we are quite nervous about it.
It is difficult to try and remain positive ! Is there anyone out there with experience of Pomalidomide ?
Stay safe xx
Hi and welcome to the online community
I'm sorry to read about the problems that your husband has experienced while being treated for myeloma. It must be a very hard time for you both and it's natural to want to find others with experience of a new drug that he might be starting.
The community is divided up into different support groups so I'm going to recommend that you join the myeloma group, where you can ask questions and share experiences with others who have myeloma, and also the carers only group which is a safe place to discuss your worries and get support from others who are caring for someone with cancer.
To join these groups just click on the links I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post questions in the same way as you posted here and join in with existing conversations by clicking on 'reply'.
When you have a minute, it would be great if you could pop something about your husband's journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
