Now that treatment is finished

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This is my first proper post, I’ve copied and pasted from my profile do I can ask how do you move on  once treatment is over  

I was diagnosed last May with Stage 2B non small cell lung cancer  (Adenocarcinoma). I had a lobectomy in June followed by adjuvant chemo, which I had from Aug to Nov. I have been given the all clear and although I am better physically than I was, I have still have fatigue, neuropathy, a cough and not enough oil in my joints lol!.  Emotions are harder to deal with, it’s like I’m permanently trying to keep balance on a wobbly fence!  

My dad, brother and one of my sisters died from lung cancer,  I was lucky, I was diagnosed early and I am grateful for this but now... guilt sneaks in because I’m still here and they’re not. I know this will pass, I have another sister who often reminds me that she still lives n breathes (she’s a brilliant big sis).  I also find myself in emotional conflict, to the outside world I’m “cured”  but... inside I’m still stuck in cancer mode.

I find it difficult to talk to my husband and sis about how I feel now, I’ve tried to explain but they just don’t get it. It was easier when I was actually being treated, it was a more a physical thing then too.  Anyway, I decided the other day that I needed to speak to people that have been though what I've been through, so I could talk without having to censor what I feel. So here I am Slight smile

  • Hi and a very warm welcome to the online community

    It's great to hear that you've been given the all clear. 

    I think unless you've had cancer you don't appreciate that you are forever changed having had cancer and because you're "cured" you don't magically go back to the same person that you were before the diagnosis. Friends and family don't understand the worries and emotions we still have.

    I can see that you've already found and joined the lung cancer group which would be a great place to share experiences and talk to others about how you feel. Clicking on the link I've created will take you straight there where you could start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.

    There is also a life after cancer group which is a space to discuss things like the physical and emotional after effects of cancer, returning to work, or trying to move on with your life. Again, clicking on the link will take you to the group if you wanted to join.

    If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help.

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi and a welcome from me. Can I just add to what latchbrook has said

    There is an excellent article by psychologist Dr Peter Harvey AFTER THE TREATMENT FINISHES

    It really is worth a read not only for yourself but your family. It has helped me and a lot of people too.

    Good luck

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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