Hiya everybody
I have just joined this although I live in Spain so my treatment might be different - not sure. To be honest just glancing over some posts I have no idea what all the abbreviations are! Hoping for some support and to ask questions.
A bit about me. I found a lump in righ breast mid Nov, had mammogram, scan and biopsy couple of days later and results on 1st Dec that I have 3cm tumor and 2 lymph nodes HER2 positive - I don´t really know what that means apart from oestrogen positive. I am super sensitive to knowing/learning anything which might scare me or make me paranoid as my stress levels are very high.
I had first chemo and antibody (immunotherapy - not sure what much of thi is called in English - I´m English but all this is happening in Spanish which I speak fluently but don´t know the equivalent words!) on the 14th Dec - 2 lots of Antibodoes and Chemo - Docetaxel and Carboplatino. I felt OK for two days went running as normal etc, then 3rd day started with nausea, diarrhea, rash all over back and chest, allergy to silver (?), bumps and red spots all over hands, bone ache and general tiredness. Lated for 10 days then had some bad news unrelated, and ended up with urine infection and low white blood count so was given the injections to raise that which had worse side effects!
Anyway saw oncologist couple of days later and blood count good - too high in fact. He changed to Paclitaxel lower dose but every week and I had first one yesterday so hoping I feel better and it is worth the 3 hour round trip every week (I live in the middle of nowhere with my two little kids).
Because of this whole COVID shite my family can´t come here so a lot of juggling with childcare. Also self employed in tourism business which is shafted!
I am having 15 sessions of chemo in theory including some of those with antibodies, then magnetic resonance scan to see if lump shrunk and then surgery then radiotherapy.
No idea if Spain is better of worse than UK or if treatment different. Certainly it is very fast here but would like to know if I am missing anything???
Also I was planning to take Reishi mushroom extract. So confused about what to take and not take. I am vegetarian but started eating fish for protein as can´t have tofu now. Have been told no green tea, grapefruit or turmeric which are things I would normally have and I know are anti-cancer - but seems unclear what to take with chemo.
Sorry this is rambling and a mix of things probably for differtnt threads but there you go - any advice so appreciated. I went on Babycentre forms when I had my kids here as I didn´t know many people with babies and Spain is very differnt with childbirth/breastfeeding etc - I found it so helpful and supportive so hoping this will help too.
Thanks ladies in advance xxxx
Hi and a warm welcome to the Online Community, a Community that no one really looks to see themselves joining, and so sorry to hear about your BC diagnosis.
A cancer diagnosis brings confusion, stress and many questions but I found talking with other people who are on the same type of journey helped a lot.
The Community is organised into support groups so you may want to start by joining our supportive Breast cancers group as this is the place where you will connect with others walking the treatment journey both as patient or family.
Follow the above link then choose ‘click to join' or ‘join’ when the page opens. You can then introduce yourself, post questions or just join in with existing discussions by clicking on 'reply'.
Our Online Information and Support Section is a good place to find information covering diagnosis, treatments and pages covering most types of cancers.
All the very best.
Hi Mike
Thank you - shall I copy this post to a different group then?
Hi KSD
Copying might be the quickest way to get some answers. Good luck xx
Dani
Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019
Whatever cancer throws your way, we’re right there with you.
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