Petrified of my never ending brain tumour

FormerMember
FormerMember
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Hi everyone. My name is angela and I have been working all my life and I had my first daughter late in life. Then when she was just gone  4 and I was diagnosed with a brain tumour. 2 weeks later I was in the heath hospital. Preparing me for an operation. I was so worried about leaving my girl on her own with life. Had the op, I was so happy to survive the operation. Then I was back home and had to wait now for results. Worst time of my life and I couldn't tell my girl. I had to hide it from her. It tore me up inside. The result was back I had to go back to the hospital for them. Very very scary time and they had removed 70-80% of it. So I had to get radiotherapy and chemotherapy aswell but I am still here so far. I had my 2nd girl then and everything was going well. Regular scans and so far. Nothing had changed. Then I lost my best friend, the most thoughtful person in my life, my mammy. About 3-4 months ago and my scan results came back now the tumour has a bit of swelling on it........... I am so scared doing this without her by my side and I can't believe she has gone now lung cancer she passed away in my arms aswell. Which tore  me apart. I don't want to be with out her. XXX

  • Hi Angel13, I am so sorry for your loss and everything you are going through. It's not the same but you have all the lovely people on this forum.  I'm very new to it but it seems very supportive.  I read through the posts and reply to someone I feel drawn to and strike up a conversation.  Nights I am finding are going to be difficult as is not keeping busy so try and keep busy as best you can.  My children are older 21 and 22 and I haven't told them yet.  It's difficult to know what's best.  How old are your girls and do they know now?

  • Hi Angela  and a warm welcome to the Online Community, a Community that no one really looks to see themselves joining, and so sorry to hear about your on going challenges.

    A cancer diagnosis can bring a lot of confusion, stress and many questions but talking with other people who are on the same type of journey can help a lot.

    The Community is organised into support groups and I see you have joined our supportive Brain tumours group as you will connect with others walking the treatment journey both as patient or family.

    Follow the above link then introduce yourself, post questions or just  join in with existing discussions by clicking on 'reply'. 

    It’s always good to talk and the Macmillan Support Services provides lots of information, support or just a listing ear.

    Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.

    All the very best.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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