Throat cancr

I am a newbie to this group and not done anything like this before.

My husband was diagnosed with vocal chord cancer on New Year's Eve this year.  It was T1 and he was given a 95% success rate. 

He underwent his radiotherapy in February just before Covid struck.  He responded to the treatment really well and seemed to be getting there if a little exhausted with it all.  He eventually managed to get his follow up appointment about 5-6 weeks ago because of Covid and had a camera down his throat and the consultant confirmed that everything was fine.  My husband had been getting a sore throat again and his voice was starting to go and and he mentioned this to him.  He was therefore sent for an ultrasound scan about 4 weeks ago and he received a letter to confirm that everything was clear and nothing sinister going on and hoped that this alleviated any concerns he had.

About a few days later he started to feel unwell.  He developed a cough and his voice started to deteriorate again and had thick mucus in his throat and he was extremely fatigued in that he spent most days in bed asleep for about 10 hours and he started to choke on his food and even water.

After a lot of arguing and shouting because I did not know what was going on it really started to take it's toll on our relationship as he could not seem to understand that I was extremely worried about his health.  I did touch on the possibility that he may be depressed but that just lit the blue touch paper and made matters worse.

Eventually one night after chocking on his tea he made an emergency appointment with his consultant.  His usual consultant was not available and he saw one of the ENT team.  A camera was put out down his throat and he was told that his throat was quite inflamed but there was no lumps or bumps but a lot of congestion.  By this time his breath had started to smell awful too especially when he coughed.  It was decided that they would have him in and have a look under anaesthetic. The consultant however was very optimistic and said that he thought his problems may be down to the radiotherapy treatment (although he had this 8 months ago).

He attended hospital last week and underwent the investigations.  The consultant that was doing the investigations was quite chatty and said that he was still of the opinion that the radiotherapy was the cause of his problems. Before leaving the hospital he was given a discharge sheet which stated on it that there was a lesion on his vocal chord and subglottii and biopsies had been taken of these areas.  It also stated that there would be a meeting with the MDT and a follow appointment made for him to attend.  No one came to see my husband from the medical team to discuss any of this with him or if he was in pain what medication to take and he was left scared and frightened.

My husband contacted the ENT Department the next day as after trawling through loads of cancer websites his worst fears were being realised that the cancer was back and it would be more severe this time.  The ENT Department explained that until the results of the biopsies came through then they were unable to comment and as regards the MDT meeting they did this every Monday to discuss all that week's admissions and findings and that he would then be sent a letter for a follow up appointment in the New Year and told him to try and be positive.

I am as you imagine at the end of my tether as I do not understand how you can be told that everything was fine 5-6 weeks ago by the consultant and an ultrasound scan to now find out that lesions have developed and his health has deteriorated rapidly with regard to constant chocking.

Has anyone had a similar experience and any advice for me. 

My husband is my life as I have no family so am alone and I have a significant health problem too which needs constant monitoring so I am finding it hard to cope and deal with the situation.