Hello - new to this site and could do with some support please

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Hi all, I’ve put off joining any online forums before now because I thought I was coping just fine as I was. I’m not so sure now...

My darling partner of the past 16 years (and fiancé if we are ever able to get married) was diagnosed with late stage cancer (oesophageal) in October 2019. 

He was doing so well with the treatment until last summer. The first round of chemo attacked the tumour and it has not given him any trouble since. Unfortunately the cancer has metastasised into his spine and is now untreatable. The last few weeks have been really difficult and we’ve been trying to manage the pain. He was admitted to hospital last Friday and we’ve been told that he only now has weeks to live. I’m hopeful of getting him home tomorrow but the thought of the next few weeks terrifies me and the thought of losing him breaks my heart. We don’t have children and it’s just always been him and I. He’s only 51 and it all seems so unfair and unjust. 

I’m scared and I just don’t know where to turn. I have good friends but I think I could get a lot of support just by talking to others going through this too. Any help/pointers welcome. Thanks. 

  • Hello CD Girl

    I am so very sorry that things have escalated for your partner, but I am pleased that you reached out for some support for yourself. 

    My husband was diagnosed in May, a fast paced OC condition and given a poor prognosis, I joined Macmillan because I felt there was no better place to get to find people who understood and others who could advise if needed...I started by joining https://community.macmillan.org.uk/cancer_types/gullet-oesophagus-cancer-forum 

    I do not have experience with spine metastases and I am so very sad to read that a short time prognosis has been given to your partner, I have no words to fully support you, but I am here, I am in and out of the site often.   

    My Husband is 52, it's no age at all... this is such a cruel disease Angry

    https://community.macmillan.org.uk/cancer_experiences/supporting-someone-with-incurable-cancer-forum  this forum is another area of this site in which you will find other's who are going through similar experiences to you... you will I am sure receive support and understanding here.

    Thinking of you both and sending strength at this time

    Lowe'

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!
  • Thanks Lowedal,

    I couldn’t sleep last night as I felt totally overwhelmed by it all. Your reply made me feel that there are others going through this too and we can try to support each other. 

    I got Gary home today from hospital and I feel happier knowing he’s back home where I can look after him properly. His parents have been round tonight and that was hard, his poor mum is in bits. He’s 51 - and like you say, no age. He was always so active and fit and involved in local football. Cancer is a

    I’ll check out the forums you mentioned and I had a quick look at your blog too. That was really interesting, I have lots more of that to read when I get a wee bit of time.

    Thanks again - we’re all in this together. 

    Solidarity Muscle 

  • I am pleased that my response helped, even if it was in the smallest of ways. Having the courage to reach out when everything around you seems to be falling apart is a mark of your own strength and understanding that you have to take time for you, to deal with your emotions and Breathe....

    Things will be tough, but we will be here...when you need as 

    Sending Strength Pray

    Lowe'

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!
  • Hi , you have received some great support from .

    I thought I would also highlight the Macmillan Support Services. This free services provides lots of information, support or just a listing ear as it’s always good to talk

    Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available.

    You can use other methods to contact our Support Services (LINK) and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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    Hello cd girl I have just joined this site today my husband was diagnosed with stage 4 lung cancer two weeks ago and has been in hospital since, he has been offered chemotherapy but can’t get this because of a hole in the lung and fluid.  He has had a pump in the whole time.  What I am finding the hardest is not being able to see him and so afraid that something could happen without me there. I am older than you and think like me you should make the most of the support of your friends, having the support of good friends who are there for me gives me strength to face the day.  I know I have a very difficult journey ahead but having this site lets you know we are not alone.

  • Hi Miasmum...

    Thank you for joining the site today, you are very welcome and I hope you find many different areas of support here...

    I am truly sorry that you are unable to be with your Husband at this time, I know that I would personally struggle with that.  

    If you need any help navigating the site, feel free to ask.

    Lowe'

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!
  • Thanks Mike, I’ll look into your suggestions.

    Much appreciated Blush 

  • Hi - your situation sounds dreadful. My partner was in hospital over the last weekend but I was able to visit and that was a lifeline for both of us. 

    I agree that the journey ahead is a frightening and scary one but having this forum does help. 

    Sending strength Muscle

  • Hi and a second welcome to the online community

    I'm very sorry to read that your husband has been diagnosed with lung cancer and I can understand what a difficult time this must be for you both.

    As Lowedal has said the community is divided up into areas of support both for specific cancer types and also for cancer experiences. I'm going to suggest a couple for you to think about joining. The first is the lung cancer group, where you can ask questions, share experiences and get support from others with this type of cancer and the second is the carers only group which is a safe and supportive place to share your worries with other carers.

    To join these groups just click on the links I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post questions after selecting '+New' or '+' (again depending on the device you're using) and join in with existing conversations by clicking on 'reply'. 

    When you have a minute, it would be really useful if you could pop something about your husband's journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    x

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