I am looking for support and feeling isolated and scared and would love to share experiences. I have terminal lung cancer - been a long journey beginning a year ago. They say it is 'treatable but not curable'. I'm currently having immunotherapy and am on my 4th cycle. I have been really missing support from others in a similar situation. I am not sure how much to say right now but would definitely like to talk to others and share experiences. I am in my late sixties, I have a wonderful daughter and two amazing grandchildren, girls aged 7 and 9. The thought of not being there to watch them growing up is unbearable. Also the thought of leaving my daughter. We are very close.
Hi and a warm welcome to the Macmillan Online Community, a Community that no one really plans to see themselves joining, and so sorry to hear about your lung cancer diagnosis.
I am 21 years into my ‘treatable but incurable’ journey and doing good at the moment so ai do understand where you are at and the challenges you are facing.
A cancer diagnosis brings a lot of confusion, stress and many questions but talking with other people who are on the same type of journey helps a lot.
You may want to start in our Lung Cancer and Living with incurable cancer - incurable patients only groups as these are the places where you will connect with others walking the treatment journey both as a patient or family.
Follow the above links then choose ‘click to join' or ‘join’ when the page opens.
You can then introduce yourself, post questions or just join in with existing discussions by clicking on 'reply'.
Its always good to talk and the Macmillan Support Services provides lots of information, support or just a listing ear.
Most services are open 8am to 8pm, 7 days a week and it's free to call on 0808 808 00 00 have a look by Clicking here to see what is available.
You can use other methods to contact our Support Services (LINK) and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
lAll the very best.
