Hello I have atypical cll TP53 mutated I’ve been on ibrutinib since March with few side effects this month blood test showed high LDH level 613 have checked all blood results over the months and can’t find any other result to go by just worried as my right leg is swollen above my knee 1&1/2 inches bigger than my left leg just wondered if it could be connected
Hi and a very warm welcome to the online community
I'm sorry to read that you've recently been diagnosed with CLL but glad to hear that your treatment is giving you very few side effects.
As the community is divided up into various groups I'm going to recommend that you join the CLL,SLL, HCL group where you can ask questions, share experiences and get support.
To join the group just click on the link I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post your questions in the same way as you did here and join in with existing conversations by clicking on 'reply'.
When you have a minute, it would be really useful if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Wishing you all the best and if you have any difficulty navigating the community just drop me a reply and I'll be pleased to help.
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