Hi everyone,
I have no idea if I am doing this correctly...I hope I am I have never used any community forums before!
I just wanted to post to see if there were any other people in my position really. My Mum was diagnosed with multiple myeloma when I was 16 years old back in 2012, she has undergone chemo and a stem cell in transplant in the year 2013 and amazingly stayed in remission after for almost 6 years! Since her relapse in 2019 she has undergone 9 months of weekly chemotherapy and has now started having monthly immunotherapy. On top of the myeloma she was also diagnosed with thyroid cancer (separate to the MM) and has recently had her second half of the thyroid out. Due to covid it has been a real struggle as we have had to shield properly from the world since March, I have a brother however he doesn’t live at home so I feel a lot of weight on my shoulders especially recently in the pandemic, I am only 22 years old. My parents aren’t together and my Dad lives else where re married so I am feeling rather alone. We lost my lovely Nana in 2019 also to cancer which was very sudden and a massive shock to us all, since then my Grandad has been living alone but the older he gets the more I worry about him and feel the added pressure to also take care of him along side my mum and my self. To be honest I am really struggling at the moment to cope with eveything that is going on and I am not even sure whether to post this or not as I’m not sure what it will actually do but I guess I am just looking for people in a similar situation to myself to feel some sort of normality.
sorry for such a long post! I hope everyone is getting on okay in lockdown recently !
Hi and a second welcome to the online community
It sounds like you're doing an amazing job trying to look after everyone and I can understand why you now feel the need for a bit of support yourself.
The community is divided up into various groups so I'm going to suggest a couple for you to think about joining. The first is the myeloma cancer group where you can ask questions and share experiences with others with the same diagnosis. The second is the family and friends group which is a safe and supportive place to share your worries with others who have a family member with cancer.
To join either or both of these groups just click on the links I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the pages that open. You can then post questions by selecting 'New' and join in with existing conversations by clicking on 'reply'.
When you have a minute, it would be really useful if you could pop something about your mum's journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
