Newly diagnosed with melanoma & scared

FormerMember
FormerMember
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Hi everyone. 

I've been reading many posts here this week before actually setting up my account here. I've been diagnosed with melanoma this week and it has come as a massive shock. I am 40 years old & had a new mole on my toe for around 2 years. Last year I've noticed it started to grow, so I saw my GP who said it was nothing to worry about and asked me to come back if the mole doubled in size in a month. It didn't, but it doubled in size in 6 months, in the first lockdown. I took pictures, emailed them to my GP and got referred under 2ww to see a Dermatology Consultant. The Consultant had a look at my mole and all other moles, and confirmed it wasn't cancer. We still agreed to have it removed as I was concerned about it, but as it was confirmed as non cancer, I was told the removal would be in 5 months time. I was relieved, it was nothing to worry about, but I did see the mole grow all this time whilst waiting for the removal. Finally, October came, I had the mole removed and sent for a biopsy (routine procedure) but again been told it will all be fine. Only that it was not. Last Friday, 4 weeks after the biopsy, after chasing up my results, I had a phone call and been asked to attend an appointment the following Monday. Whilst I thought, well it's been confirmed many times as non cancer, I had a very bad feeling as not many people are called back in during 2nd lockdown. At the appointment it was confirmed, I have melanoma. Stage 1B, 0.95mm. Need a wider local excision, skin graft and possibly a sentinel node biopsy, but all this will be discussed with another hospital. I've been a mess this week. I have a little boy and a loving husband and, as you do, I never thought this could happen to me, especially that I've been so careful and seen professionals as soon as I've spotted something not quite right. I am due to have a consultation about what's next and the op next Tuesday and am feeling sick just thinking about it. As strange as it sounds, I would be over the moon to be 1B. What petrifies me is that one can go from 1B straight to stage 3 depending on the sentinel node. My biopsy took 4 weeks as it had to be sent for another opinion externally as it was not clear cut and it was being debated whether it was cancer or not. Looking for some support, positive stories, and advice: would you have the sentinel node or not. Part of me feel very strongly that I need to know what stage I am for sure, part of me is too scared to ask and would rather assume 1B, though I know this is not very wise!!! My lymph nodes were checked during my appointment this week and all seemed fine. Still, very very scared, as this mole was so many times before classed as non cancer yet kept growing all this time. Thanks xx

  • Hi D1980

    Welcome to this community that no one wants to have to join, but you have done a really brave thing by posting and I hope all well go well with your treatment and diagnosis. It is quite normal to feel scared when you start hearing the c word, a real shock to the system and really sends you into a spin. Great news your lymph nodes were clear, that is a very heartening thing to learn, I know the immense relief I felt with the same news after my mastectomy. 
    just take small steps on this journey. One thing at a time, more than that is mind blowingly difficult to cope with. Deep breaths when things start to become too much. 
    I hope you found posting your thoughts on here helpful, it is a really good way , and place, to share your fears and ask for advice. Through my 3 cancer experiences talking with others about it has been difficult, but when I summoned up the courage to do it, helped me tremendously.

    Keep yourself well and a positive attitude will help you through this roller coaster.

    take care and good luck

    MrT1

    Cancer may affect my body, but I won’t let it affect my spirit