Hello.

FormerMember
FormerMember
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Hello, I’m new to this community, so not quite sure where to start, or what to say.  Here goes......

My husband has non-small cell lung cancer, with secondary in his right hip bone.  This was diagnosed in June 2019 and after treatment, chronic colitis and spells in hospital, things are were good with the cancer in retreat.  He’s now developed pains in his left leg which was scanned and showed nothing untoward.  However, the pains have become very bad and no pain relief is touching them.  His consultant is arranging a PET scan for further investigation.   We, as I suspect all of you, shielded from March to late August and just began to venture out, see family and visit friends, then the leg pains started.  I had been hoping to start getting out by myself, to visit a group, friends or family where I could voice and unload my worries and concerns, but no can’t do that as we are facing lockdown again. I’m feeling exhausted and emotionally drained.  I can’t telephone, or use video links, because we live in a small flat and he can hear could any conversation.  I don’t believe this would be fair and don’t want to add to my husband’s stress and worries. He’d be so upset if he though his illness was affecting my well being, more than I’m prepared to show him.  WOW, just writing this down has helped.

Looking forward to hearing from someone.

Sharron.

  • Hi Sharron and welcome to the online community

    I'm very sorry to read that your husband has SCLC which has spread to his hip and that he's in constant pain in his leg.  I know what a worrying time this will be for you both so I'm glad that you've reached out to the online community.

    The community is divided up into groups so I'm going to recommend some for you to join. The first two are the lung cancer and secondary bone cancer groups where you can ask questions and share experiences with others who have this type of cancer. The third group is only for carers and is a safe and supportive place where you can talk to other carers about your worries.

    To join any or all of these just click on the links I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post questions in the same way that you first posted this message in the New to the Community group and join in with existing conversations by clicking on 'reply'. 

    When you have a minute, it would be really useful if you could pop something about your husband's journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Sending a virtual ((hug))

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember in reply to latchbrook

    Thank you so much for the information. I’ll have a look at the groups and my profile Grinning

  • You're more than welcome Slight smile If you have any problems finding your way around just give me a shout.

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"