Hi, I'm new to this community, but unfortunately not new to cancer. 23 years ago I was successfully treated for heptosplenic non hodgkin's lymphoma and have enjoyed good health since until now... During the summer I noticed a change in my bowel movements on top of what I thought was a return of piles and an anal fissure. Trip to GP revealed a lump in my lower rectum. A colonoscopy showed a tumour. So I and my specialist thought I was on track for general treatment for bowel cancer however the biopsy revealed that the tumour is lymphoma in origin. I have now been referred to haematologist for follow up next week. After all this time this news was a real punch to the stomach and the thought of going through CHOP again is daunting. Emotionally up and down as well as having to deal with unpredictable and painful bowel movements. Also following a low residue diet which is challenging. Any support and tips welcome
Hi and welcome to the Online Community, a Community that no one ever really plans to see themselves joining, and so sorry to hear about your possible NHL relapse.
I was diagnosed with a rare skin NHL over 21 years back and have had multiple relapses over these years but presently 4 years in remission but will never see cure.
You may not get CHOP again as a lot of these treatments are once only but over the past 20+ years there have been massive steps in blood cancer treatment.
There have been a few folks in our Non-Hodgkin lymphoma support group with presentation in the bowel so why not come over and join us in the group.
Follow the link I've created above then choose ‘click to join' when the page opens.
You can then introduce yourself and post questions selecting '+New' or '+' (depending on your device) you can also join in with existing discussions by clicking on 'reply'.
Its always good to talk and the Macmillan Support Services provides lots of information, support or just a listing ear.
The service is open every day 8am to 8pm and it's free to call on 0808 808 00 00 have a look by Clicking here for more information.
You can also email them, use the online chat and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
Our Online Information and Support Section is a good place to find information covering diagnosis, treatments and pages covering most types of cancers.
I will keep an eye open for you in the NHL Group.
