Don’t know how we are going to coupe

FormerMember
FormerMember
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Hello 

11th August I found a lump in my breast. While waiting for my appointment my husband is unwell, breathless,cough fever. He was like this for 3 weeks. Doctor had him to have COVID test, came back negative thankfully. Then he had X-ray on his chest that came back clear. Then on the 18th September I had to call 999 his temps was showing 39+. The following morning the doctor from the ward phoned me. With the words leukaemia. I just fell to my knees. My husband was always healthy,fit and active. They started intense cemo for 10 days straight.

Then on the 28th September I had my appointment,I have breast cancer. 
I don’t know what treatment I’ll have yet,I’ll know more on Thursday this week.

in the mean time my husband gone back into hospital cause he has an infection, he’s been ill for 7 days now with it. Can’t go and see him cause of COVID. He’s really sound down on the phone. 
I don’t know how we are both going to get though all this, I’m trying to stay positive but it’s so hard.

Im 47 and my husband is 52 we have 1daughter 24 yrs and 1son 20 yrs. my son still lives at home. My daughter lives a few miles from us with her partner and my beautiful granddaughter. 

  • My goodness.  What a lot to deal with.

    Do you know which type of leukemia your husband has? There are acute and chronic forms and they're managed differently.  We have groups for the different types.

    We have a very active breast cancer community who will provide you with invaluable support.

    community.macmillan.org.uk/.../

  • FormerMember
    FormerMember in reply to Lolie

    Acute myeloid leukaemia my husband has Lolie. He sailed though his intense 10 days came home for 4 days. Then went for his day care appointment and was unwell that morning. He’s not been home since.

  • Here's a link to the AML group.

    https://community.macmillan.org.uk/cancer_types/acute_myeloid__leukaemia_myelodysplasia/

    Unfortunately, the nature of blood cancers is that both the disease itself and the treatments have an impact on our immune systems and leave us vulnerable for a while.  At the time it seems like you'll never feel human again, but it does get better with time.

  • FormerMember
    FormerMember in reply to Lolie

    Husband still in and now has an infection in the chest so on oxygen. I’ve not been able to speak to him for days now, he does text when he can. He’s not eaten much since been in so they going to give him a feeding tube. I’m just worried sick for him.

    I still don’t know what the plan is for me yet, I had to have another biopsy on Wednesday. I’ve got a appointment next Thursday now fingers crossed they got a plan.