I was diagnosed with DCIS grade 3 earlier this year and had 2 breast conserving operations in order to obtain clear margins. I was due to have radiotherapy after healing but was told in March that I would be unable to have the treatment because of Covid. I asked when I would be offered it again but was told that this would not happen because the treatment needed to be completed within a certain period of time.
7 months on I am now starting to worry about the DCIS returning as it was Grade 3 and wondering how likely it is and how quickly
Hi and welcome to the Online Community, although I am always sorry to see folks finding us and so sorry to hear about your DCIS diagnosis and your worry about a return. Having been in remission for 4 years now and not achieving a cure I do understand.
I found talking with other people who are on the same type of journey helps a lot.
The Community has various cancer specific support groups so can I direct you to our Breast cancer group as this is the place where you will connect with others walking the treatment journey both as patient or family.
Follow the link I've created above then choose ‘click to join' when the page opens.
You can then introduce yourself and post questions selecting '+New' or '+' (depending on your device) you can also join in with existing discussions by clicking on 'reply'.
The Macmillan Support Services provides lots of information and support. The service is open every day 8am to 8pm and it's free to call on 0808 808 00 00 have a look by Clicking here for more information.
You can also email them, use the online chat and we also have our Ask an Expert section, but do allow two working days for replies from our expert team..
All the very best.
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