Hi there,
I received a diagnosis of PPC at the end of July. Was a total shock to say the least! I've had 3 rounds of chemo, and my markers are down from 998 to 400 already. My oncologist says I'm doing so well, I won't need a scan until the end of treatment.
With the ever present Pandemic, what I'm really missing is a chemo buddy. I have lots of great support, but nobody knows what I'm going through, so it can be quite a lonely journey at times.
I'm keen to talk to people on a similar journey, and hope that you're all making great progress too.
I remain positive, even though I know it's an incurable diagnosis. I look forward to hearing from you.
Hi and welcome to the Online Community, although I am always sorry to see folks finding us and so sorry to hear about your diagnosis.
A cancer diagnosis brings a lot of confusion, stress and many questions but indeed, talking with other people who are on the same type of journey helps a lot.
The Community has various cancer specific support groups and I see you have joined our Peritoneal cancer group, this is the place where you will connect with others walking the treatment journey both as patient or family.
Follow the link I've created above then you can introduce yourself and post questions selecting '+New' or '+' (depending on your device) you can also join in with existing discussions by clicking on 'reply'.
It’s always good to talk - our Macmillan Support Services provides lots of ways to connect. The service is open every day 8am to 8pm and it's free to call on 0808 808 00 00. Clicking here will give you more information.
You can also email them, use the online chat and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
All the very best.
