Hi I am new to this forum and I would like to wish everyone well.
I was diagnosed with advanced prostate cancer Nov 19. I have had first round of chemotherapy and then onto Degarelix and Biclutimide. My PSA has risen as follows from May to September:
6, 5.9, 8.6 and finally 25.9. My Oncologist has said that this is an upward trend and that the current treatment has stopped working.
I now have choices, as I have been given no advice as everyone will react to treatment in a different manner.
Further Chemo
Enzalutamide
Aberaterone and Prednisolone.
I am tempted to take Aberaterone but I am concerned about weight gain and getting a moon face. My Prednisolone would be 5mg twice a day.
Is there anyone who can help me make this decision on the next step. I am being truthful when I have stated that my Oncologist is giving me no advice despite requests from me.
Thanks Martin
Hi Martin and welcome to the Online Community, although I am always sorry to see folks finding us and so sorry to hear about your diagnosis.
A cancer diagnosis brings a lot of confusion, stress and many questions but talking with other people who are on the same type of journey helps a lot.
The Community has various support groups and I see you have found our Prostate cancer group, this is the place where you will connect with others walking the treatment journey both as patient or family.
Follow the link I've created above then you can then introduce yourself and post questions selecting '+New' or '+' (depending on your device) you can also join in with existing discussions by clicking on 'reply'.
It’s always good to talk - our Macmillan Support Services provides lots of ways to connect. The service is open every day 8am to 8pm and it's free to call on 0808 808 00 00. Clicking here will give you more information.
You can also email them, use the online chat and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
Our Online Information and Support Section is a good place to find information covering diagnosis, treatments and pages covering most types of cancers.
All the very best.
