I was diagnosed 12 years ago with a rare cancer ACC in my right tear gland had to have my eye removed and radiotherapy.
At the beginning of lockdown I had to get a lump checked and it came back as ACC again, secondary to my eye, CT/MRI has shown 6 mets in 5 places.
I am getting radiotherapy next Friday to one on my brain, then hopefully couple weeks later an operation to remove the lump as it has grown back, the other 4 they are not treating just now as they are not causing me any problems.. To the outside world I am strong and positive but inside I sometimes feel so lonely and empty.
What do others do to pick themselves up when they are feeling low?
Hi and welcome to the Online Community, although I am am always sorry to see folks finding us and so sorry to hear about your recurring cancer diagnosis.
A cancer diagnosis brings a lot of confusion, stress and many questions but talking with other people who are on the same type of journey helps a lot.
The Community has various support groups and I see you have joined our Adenoid cystic carcinoma and Eye cancer groups, these are the places where you will connect with others walking the treatment journey both as patient or family.
Follow the links I've created above then introduce yourself and post questions selecting '+New' or '+' (depending on your device) you can also join in with existing discussions by clicking on 'reply'.
It’s always good to talk - our Macmillan Support Services provides lots of ways to connect. The service is open every day 8am to 8pm and it's free to call. Clicking here will give you more information.
You can also email them, use the online chat and we also have our Ask an Expert section, but do allow two working days for replies from our expert team.
Our Online Information and Support Section is a good place to find information covering diagnosis, treatments and pages covering most types of cancers.
All the very best.
Mike - Thehighlander
It always seems impossible until its done - Nelson Mandela
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