Hi everyone, since Christmas I have been diagnosed with Jak2, RA and Showgrins syndrome.
I dine on Methotrexate, aspirin and Hydroxycabimide and lashings of eye drop combinations.
I have the best Consultants in the world who have slowed everything down and put my life back together. As I'm now retired I spend loads of time listening the Heart and doing exercises on my good days, to get as fit as possible.
I'm going for a PIP application at the moment armed with some great advice from Mcmillan support, fingers crossed.
Hi , welcome to the Community but I am sorry to see you finding us and it does sound like you have been having a challenging time.
Just to ensure I direct you to the best place for you to get support I am reading between the lines and thinking you have a type of blood cancer - do correct me if I am wrong.
Mike
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007