My husband has been given a terminal diagnosis after being told he has an aggressive grade neuroendocrine carcinoma.
Have been passed from pillar to post For the three weeks since diagnosis with no offer of treatment in place other than the attention of the palliative team.
Finally have an appointment next week. Does anyone else feel abandoned by the system? In a time when we feel desperate and shell shocked does anyone else feel like there just isn’t continuity of care and nobody is doing anything to treat the cancer, just pain killers and potions to alleviate some of the symptoms.
Hi and welcome to the Online Community, although I am so sorry to see you finding us and so sorry to hear about your husbands diagnosis and sorry to hear the challenges you are facing.
A terminal cancer diagnosis indeed brings a lot of confusion, stress and many questions but I found talking with other people who are on the same type of journey helped a lot.
You may also find our Carers only and Supporting someone with incurable cancer groups a benefit as you will connect with others supporting family through their cancer journey.
Follow the links I've created above then choose ‘click to join' on the page that opens.
You can then introduce yourself and post questions selecting '+New' or '+' (depending on the device you're using) and join in with existing discussions by clicking on 'reply'.
It’s always good to talk, so can I highlight the Macmillan Support Line on 0808 808 00 00 This service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00
Our Online Information and Support Section is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.
All the very best.
Mike - Thehighlander
It always seems impossible until its done - Nelson Mandela
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