He was diagnosed with some rare form of pancreatic cancer last year which causes him to over produce insulin, that's how they found it.
It has spread. He has it in his liver and his stomach too now. Also his neck has tumours as well
He has had one form of chemo. They have him on another one but they cut the dosage because it gave him nosebleeds. The next one will make his hair go grey. The other chemo option they said will make his hair fall out and he won't do that one he says.
He is tired all the time, in a lot of pain. They give him oramorph and all sorts of things. But he is always in pain or asleep.
It's a really rare form of pancreatic cancer insulinoma? I'm probably not getting it all right here. I find it quite confusing to keep up.
Basically the doctor said last year that not matter what we do this will kill you. Time frame unknown. But since he spent 6 months out of a year on chemo and now he has even more tumours, so not looking good
My brother appears cool as a cucumber about all of this. Chemo all the time. Freezing his sperm so he could have kids maybe. And for that I am grateful, I've only seen him cry about it once. Doesn't mean he isn't upset of course. And his girlfriend who has stuck by him even tho he is going to die.
I don't ever show him but I am finding all of this very distressing. It's all I can think about. I'm sitting on a train. Writing this message now half crying. It's messing my life up but that is rubbish, my brother is the one with the illness
Hi and welcome to the Online Community, although I am so sorry to see you finding us and so sorry to hear about your little brothers diagnosis.
A cancer diagnosis indeed brings a lot of confusion, stress and many questions but I found talking with other people who are on the same type of journey helped a lot.
The Community is organised into various support groups so can I first direct you to our Pancreatic cancer group as this will connect you with people walking the treatment journey.
Follow the link I've created above then choose ‘click to join' on the page that opens.
You can then introduce yourself and post questions selecting '+New' or '+' (depending on the device you're using) and join in with existing discussions by clicking on 'reply'.
You may also find our Carers only, Family and friends and Supporting someone with incurable cancer groups a benefit as you will connect with others supporting family through their cancer journey.
It’s always good to talk, so can I highlight the Macmillan Support Line on 0808 808 00 00 This service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00
Our Online Information and Support Section is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.
All the very best.
Mike - Thehighlander
It always seems impossible until its done - Nelson Mandela
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