My sister has just been told that her head & neck cancer is back, also in lymph nodes & now cancer in both lungs. Already been through devastating radiotherapy & chemo, where she suffered all of the potential side effects, plus surgery to remove the primary tumour during lockdown as treatment didn't get rid of that. No cancer visible 7 weeks ago, nows it back so quickly & spread. She was due to have surgery to remove the latest tumour in her neck but that's now not on the table. She's been offered immunotherapy to possibly buy her some time but there is an alarming amount of possible side effects, & statistics & we're just not sure if it's a good idea. Has anyone had it, thought about it or decided not to have it?
Hi and welcome to the online community
I'm very sorry to read that your sister has recently discovered that her cancer is back and has spread to her lungs. This must be an extremely difficult time for you all and it's natural to want to know as much as possible about the treatment that's being offered.
The community is divided up into groups so I'm going to recommend a couple for you to join. The first is the Head and neck cancer forum and the second is the Secondary lung cancer forum where you can ask questions, share experiences and get support from others who have this type of cancer.
To join just click on the links I've created and then choose 'click to join' on the pages that open. You can then introduce yourself and post questions after selecting '+New' or '+' (depending on the type of device you're using) and join in with existing conversations by clicking on 'reply'.
When you have a minute, it would be really useful if you could pop something about your sister's journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
