Hi
So, back before lockdown in March, hubby was diagnosed with cholangiocarcinoma and had a lengthy operation (whipple) which , we were told, was successful. He initially recovered quickly but then hit many obstacles such as wound infections and recurring ascites. Long story short, after completing only half of his chemotherapy, we've just been told the cancer has spread to his lungs and his liver and is untreatable (he has been offered further chemo to stop the spread). To say we are devastated is an understatement. We're both 53 years old. We were at school together from the ages of 11 to 16 but only got together 9 years ago . Both of us feel so cheated as our previous relationships were equally unhappy and, having found each other again, we planned so many things for our future together. We haven't, as yet, tapped into any cancer support (denial) but now, faced with a financial and emotional crisis I think it's time we did . How do you find the strength to deal with this ? Covid-19 has made this journey so much more difficult it's been so isolating and damaging , not only to us but also my daughter who was due to sit her GCSEs. After 5 long months we're all quite drained and so it's hard to see how we can find the energy to be positive but be positive we now must be !! We now have to start living again and make new memories. I've got a wheelchair coming for my husband and , on good days, plan on trying to get out there again, visit old and new places and try to get some laughter back into our lives again.
Any practical advice would be much appreciated.
Dear
I am so very sorry to read about everything you’ve been through. I’m 56 and facing a terminal diagnosis myself and I can well imagine the emotional roller coaster you’ve ridden these past five months.
I think the decision to be positive and to try to get some laughter back in your lives is a good one but don’t overlook the important job of being sad and angry at the injustice of what’s happened to you.
We have a couple of groups where you will be able to meet people in the same boat. It’s amazing how just connecting with others somehow helps. You might wish to join the group for those supporting someone with incurable cancer
https://community.macmillan.org.uk/cancer_experiences/supporting_someone_with_incurable_cancer/
Your husband could think about joining the group living with incurable cancer. I am a member and I promise you it’s not all doom and gloom.
https://community.macmillan.org.uk/cancer_experiences/living_with_incurable_cancer/
There are plenty of practical things to be done such as getting a referral to your local hospice, reviewing your finances and wills, supporting your daughter. The folks in these groups have all been there and can help.
Wishing you all the very best
daloni
Thank you so much for your reply . Yes, I am extremely familiar with the overwhelming emotion of anger unfortunately. I'm angry at everything and everyone including my mild, gentle and loving husband for getting sick ! Weve lost so called friends along the way and family have massively let us down at times . But...other friends/family have rallied round (as much as possible during these strange times of social distancing!) and I've been truly amazed at those kind gestures from people who have been little more than acquaintances previously (now friends for life). I'm so sorry to hear of your own journey but thank you for your kind words and advice despite this. Take care and thanks again.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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