Hi everyone. In December 19 I was diagnosed with a grade 4 glioblastoma. It came as a huge surprise, given that the only symptom was pins and needles on my left hand. My GP told me not to worry, I had a trapped nerve, however I felt there was more to it so went to A&E where a ct scan found a lesion on my brain.
Two weeks later I was transferred to Romford hospital for surgery, however the surgeon said he could only do a biopsy. He took a good sample, as post surgery mri showed no inflammation left.
Did 6 weeks of radiotheraphy and oral tmz, went well with no side effects.
Unfortunately my bloods were severely affected by the chemo pills and that's when Covid arrived.
My oncologist decided I couldn't start the 5/23 chemo as too dangerous especially because of covid.
Had an mri in july, no growth detected, which I was very relieved by. Feeling ok, much better than when I was on steroids, and leading a pretty good life and keeping busy.
Has anyone else not had any treatment for nearly 6 months,? I'm concerned.
Hi and welcome to the Online Community, although I am so sorry to see you finding us and so sorry to hear about your diagnosis.
A cancer diagnosis brings a lot of confusion, stress and many questions but I found talking with other people who are on the same type of journey helped a lot.
The Community is organised into various support groups so can I first direct you to our very supportive Glioblastoma multiforme group as this will connect you with people walking the treatment journey.
Follow the link I've created above then choose 'click to join' on the page that opens.
You can then introduce yourself and post questions using ’+New' and join in with existing discussions by clicking on 'reply'.
It’s always good to talk, so can I highlight the Macmillan Support Line on 0808 808 00 00 This service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00
Our Online Information and Support Section is a good place to find information covering cancer diagnosis, treatments and pages covering most types of cancers.
All the very best.
Mike
