Good morning, since my husband was diagnosed with AML in November, had chemotherapy, stem cells & is now in remission which is great, as his wife I try to provide care and support to him at home.
He has GVHD for second time, in liver, lungs & skin rash. If you can offer any advice on how to cope that would be great. It's tough at the moment and with his low immune system around appointments it would be great if we can try & have more positive good days & make memories.
Thank you and have a lovely day.
Hi and welcome to the Community.
Having been through two Allo (donor) Stem Cell Transplants for NHL I totally understand the unique recovery challenges you are all facing.
You can hit my name Thehighlander and see my story but it has a good ending so be encouraged.
We do have our very supportive Stem Cell Transplant group so why not hit the green link and come over, join the group and introduce yourself to the folks and we can walk this with you.
Once in the SCT group you can hit the ‘Discussions’ tab and have a look at the various threads and if you want - hit reply and connect.
I will keep an eye open for you.
Hi , yes it’s been an interesting 21 years. I see your husband was only diagnosed late last year. So the treatment journey he has had in such a short time will have had a massive effect on him and you.... but it does get better... with time.
I see you have joined the SCT group so have a look round but you may find this ongoing thread helpful Life after a SCT - A Survivor's Guide
Always around in the SCT Group to help out - just watch that the Community will have some down time over the next few days as it moves to the new site.
