My daughter (now 27yrs) was diagnosed with Non Hodgkins Burkitts Lymphoma in 2016. She survived the aggressive treatment and has been Cancer free since Dec 2016. She only now been hit with the bombshell that her AMH level is only just over 1 and it is unlikely she will ever have children. Harvesting eggs before her treatment was not advised as the cancer was so aggressive and any delay could effectively cost her her life. Now, almost 4yrs post chemo she has been told that because she is single and post chemo that the NHS are unable to investigate any possible treatment. Her world has again come crashing down and she feels she is being punished again for having had cancer! I don't know what to do to help
Hi and welcome to the Online Community.
Great that your daughter is cancer free but yes, there are long lasting unfortunate issues following some blood cancer treatments.
I have actually talk with a few women over the years who went through Lymphoma treatment and were told they would never have children but went on to have.
We do have our General Non Hodgkin's Lymphoma support group. Do follow the link I've created above, join the group, then hit ‘start a discussion’ and you are ready to go.
You could then copy and paste the information from this first post into your new discussion or you can just join in with existing ‘Discussions’ by clicking on 'reply'. Lets see if anyone is looking in that can help you out with how best to support her.
You could ask your question to our Information and Support team (LINK) or take with out team on the Macmillan Support Line Services on 0808 808 00 00 covering Emotional Support and Practical Information mostly open 8.00 to 8.00 but check the link but you may find the service very busy at the moment.
((hugs))
Thanks Highlander, she was reassured at the beginning of treatment that the regime shouldn't affect her fertility too much but the news she was given today was actually on a consult with a clinic that her consultant referred her to. To me it seems they left it too long before they investigated. As the NHS will not support any further treatment on this we are going to have to look at private medical help which seems a little unfair considering all that she has already had to face.We both recognise that she is not alone but it's a bitter pill to swallow. I'll certainly have a look at the group and see if anyone has advice to offer.
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