Full pelvic exenteration

FormerMember
FormerMember
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Hi, I’m new to the community so please excuse me for any errors! 
My husband (46yrs old)was diagnosed with stage 4 bowel cancer In Sept 2019, he’s been through all the treatment and is now due a full pelvic excenteration (removal of bowel, bladder, rectum and prostrate)

My husband has shown immense strength throughout but the operation has now had a huge mental impact on him. After several delays due to covid the operation is now due 15th June 2020. I feel so helpless, he’s petrified and worried what life will be like, I’m also concerned about complications in the long run.

Although the tumour hasn’t spread consultant has advised this is the best solution to reduce re- accurance but no guarantees. I keep worrying about whether we’ve made the right decision and whether it is better to risk just removing the tumour- anyone else been in a similar situation?

  • Hi  and a very warm welcome to the online community

    I'm very sorry to read about you husband's diagnosis and I can understand how frightened you both are about his upcoming operation.

    The community is divided up into cancer specific groups so could I recommend that you join the bowel cancer group where you can ask questions, share experiences and get support from others who are living with this type of cancer and who may have had this operation.

    To join just click on the link I've created and then choose 'join this group' on the page that opens. You can then introduce yourself and post questions after selecting 'start a discussion' and join in with existing conversations by clicking on 'reply'.

    When you feel up to it, it would be really useful if you could pop something about your husband's journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Sending a virtual ((hug)) to you both

    x

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember in reply to latchbrook

    Thank you so much for your direction x