My elderly dad is scared to have op how can I help him

FormerMember
FormerMember
  • 2 replies
  • 28 subscribers
  • 815 views

My dad who is nearly 80 was diagnosed with stomach cancer just before the lockdown. It is a small 1.5cm area they originally thought was an ulcer and first biopsies were inconclusive so they believe they have caught it early. The hospital are treating him as an urgent case and he has had consultations and will get an appointment for an op within the next few weeks.

The main problem is that they have had to give him worst case scenario that they may not be able to do the op keyhole and that because of his age he may not survive the op and if they do an open procedure it could be up to a year recovery.

This has made him very scared and he is convinced he will die in the op or catch corona virus and will die in hospital with no family around him. He is now saying he doesnt want the op and would rather take his chances with the cancer.

Family think that as they have caught it early and it is only a small area that his chances of recovery are good and he could live a lot longer if he has the op than if he allows the cancer to spread. Yes we know there is still a risk of dying in the op as there is a risk with any op at any age. 

How can we get support for him? I know there are no guarantees but he needs to hear some more positive assurances and not just the scary negatives 

  • FormerMember
    FormerMember

    Hi , I’m sorry to hear of your Dad’s diagnosis and how you are not seeing eye to eye on the way forward at the moment. A cancer diagnosis is hard in the best of times but chucking in the CV-19 as well it makes treatment decisions a whole lot harder. 

    People deal with decisions in different ways I’m a patient and I’m an over thinker. I though have an incurable diagnosis though, cancer that was not discovered until it had spread. Logic went out of the window at the diagnosis stage in appointments I heard all the bad bits but my husband heard all the good bits, I’m assuming a bit like you. We talked together, it was important to me that he heard and didn’t dismiss the scary bits, and that he acknowledged that things needed to be my decision and not his. Embracing the bad side first allowed me to relax and then listen to the good bits and let the natural self survival mode kick in. With the coronavirus though some times thoughts of self sacrifice for others creep in. 

    You mention how can you get support for him, and I’m reading into this support for him to change his mind, or support for him to think things through and feel content with his decision what ever that might be. Part of that will be to hear the positive bits that you hear and how the negative bits are making you feel sad.

    It’s you who have come to the community so I’m going to look at this two ways help for you and help for him.

    For you to talk to others with similar experience to you and have support with talking and supporting your Dad and having some support for you at this difficult time I would recommend either the friends and family group or the carers group, depending on what your circumstances are. I will put some links below. I would also recommend the Macmillan info and support pages about talking and listening, and as I’m no expert I’d recommend talking to the Macmillan support staff on their telephone line.

    For your Dad, he could come or here and join the stomach cancer group and talk to others who have had the op (as could you) to see if things are as scary as they seem or to see that others have been where he is now and have mustered up their resolve to keep carrying on. Again the Macmillan support line 0800 808 0000 is also an option to call and talk things through, or he may need to talk to his hospital team. Just because the initial consultation is over doesn’t mean you can’t get back to them to ask further questions. There’s also a section in the information and support bit about making treatment decisions that he might find helpful to read. 

    Here are the links I’ve mentioned, I hope I’m not going into overload for you.

    https://community.macmillan.org.uk/cancer_experiences/being_a_relative_/discussions

    https://community.macmillan.org.uk/cancer_experiences/carers_only/

    https://community.macmillan.org.uk/cancer_types/stomach-cancer/discussions

    https://www.macmillan.org.uk/cancer-information-and-support/supporting-someone/emotional-support-for-family-and-friends/what-to-say-to-someone-who-has-cancer

    https://www.macmillan.org.uk/cancer-information-and-support/treatment/your-treatment-options/making-treatment-decisions

    Best wishes

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you for your reply it has been very helpful. Also sorry to hear of your diagnosis and thank you for being able to share your experiences

    Dad hasn't come to a decision yet he is just really scared about having the op which I understand. He has had a telephone consultation and also a face to face consultation with the aneathiatist but he said that ultimately the decision as to whether it is a keyhole op or an open procedure is up to the surgeon. Dad wants to speak to him but he has not yet been available. Not sure whether that is due to coronavirus or more urgent cases. I am sure he will have the opportunity to speak to him soon which may help with some of his fears.

    I will look at the links and forums you have shared and will talk to my mum and dad about joining the community.

    T